Sunday, June 24, 2012

Love and Loss

Let's save the small talk ("Hey, where ya been?" etc) for another time, and jump right in:

Friday I said good bye to my loyal friend and beloved companion of 12 years, Tilly Jane.

I'd come to realize in confronting the reality of her decline and eventual demise, what it might be like to have the shoe on the other foot, as it were:  What it is like to love someone whom you are aware is likely to be taken from you before you wish to let go.  Steeling one's self against such a loss is a built-in human defensive mechanism.  And I have found myself in the last two years of Tilly life, pacing the same circles of protective auto-thought that I am sure my loved ones must perambulate with me.

We want answers:  Will our loved one be OK?  By which we mean, at least in part, please assure me that I do not have to guard against losing them-- at least not now.  We all know it must, it will come sometime, but the indefinite future is so much easier for our minds to deal with than the immediate future.  Like the New Yorker cartoon depicting scheduling an appointment over the phone: "How about never?  Does never work for you?"  This is essentially how our small mind deals with big issues.  They are happening NOW or they are happening NEVER.  And "sometime in the indefinite future" is close enough to never for us.

I recognized in my own quest for solid answers regarding my dog's health and longevity what it must be like for my loved ones to try to wrap their minds around my (and therefore, their) predictament.  We just want to put that niggling little question to rest:  Will my beloved (and therefore I) be OK?  Then we can breath again and go about our business.

But the problem is that even when we get the answer we seek ("All clear, for now"), it does not solve the question.  We know there will come a time when the answer, in one form or another, will be we must face losing our beloved.  And then we go bat-shit crazy.  As well we should.  We are stuck here on earth with only these fallible beings to love, and then we find out that someday each and every one of them will be taken away?  Have a nice life!

This search for answers to the "problem" of my dog's coming death sometimes actually interfered with my ability to simply BE WITH HER while she was alive.  I could stand back and try to "solve" her, or step up and just love her.  Just embrace our situation, transience and all.  Yes, we do not get to have one another forever here on earth-- but let's not let that diminish our remarkable capacity to love with everything we've got in the here and now.

After all, the Buddhist say the HERE and NOW is the only moment that is real, anyway.  The past is over, the future a dream.

But here's the deal:  Yesterday as I stood at the top of my stairs, not hearing Tilly's nails click on the floor below me, not seeing her sweet face peer up to check on my progress, not saying for the first time in 12 years, "Good morning, my sweetest girl-est" (yes, I spoke that way with her and I am not the least ashamed to tell you so), my loss hit me like the proverbial ton of bricks.  I sat down on that top stair and wept my proverbial heart out.

What is this?  I asked myself, what is this I am experiencing?  Loss.  Loss.  And what is loss?  It is the hole left behind. it is the pond that fills up, it is the pouring out of your love for the loved one when the container of their earthly form is gone.  It is love.

And then I thought:  This is okay.  I can do this.  I can just let myself love my girl ("my sweetness and light," as I called her) in this new way.   It is sad, but it is sweet.  It is a kind of holy thing, this love that continues past the beating of the loved ones heart.  These tears honor that love and it is right and good that I should let them pour out of me.  This is just love.  A different face of love.

And in a way it is my privilege to weep, to grieve, to mourn, to honor my Tilly Jane.  The remarkable, intimate, non-verbal form of love between humans and animals is no less precious than that between human beings.  And every relationship we have is in some ways completely unknowable to anyone outside of its tiny, intimate circle.  It will not come our way again in this lifetime.  Be grateful.  Be generous.  Be willing to love.  Someday it will all be lost, like the intricate mandalas of colored sand that Tibetan monks labor over for hours and hours and then sweep away in a moment.  But what else are we here for?  Maybe one of the few things we know is that we are here to love.


Monday, January 30, 2012

Delayed Missives from the Front

At the beginning of January, our heroine was scheduled for a CAT scan to determine whether or not The Powers That Be think she should switch the medication intended to inhibit her metastatic breast cancer.  Your humble scribe kept thinking she would coalesce this info into a more eloquent form, but, heck, let's just think of this as somewhat-aged dispatches from the front, shall we? 

Some of you will have read all this before.  You may skip to the bottom of the post. 

BEGIN CATCH-UP DETAIL:
          DATELINE JAN 3, 2012
Tomorrow, Wed, at 9 am I go for another CAT scan.  Usually takes a couple of hours, mostly prep-- getting the needle in me, drinking the god awful contrast solution, then three minutes in the machine.  
Friday I am scheduled to go over results of the same with Dr L at Celilo, as part of my usual monthly visit-- which includes a blood draw and Zometa infusion and takes all bloody (no pun intended!) day... 

Tomorrow, I plan on checking again with BOTH the hospital (in HR where the scan takes place) AND with Celilo to confirm that he really will have some conclusive results that quickly...  I don't wanna get poked twice in one week for nothin! 

SO I will let you know if my Fri appointment ends up getting changed...Keep any spare fingers crossed!

          DATELINE JAN 6th, 2012
Everything A-OK!
They were able to use the IV site from Wed-- although it did cause me a bit of discomfort having that bit of plastic in my arm for two days-- still better than an extra poke.

Dr sez the CT Scan looks very good.  Basically no change (meaning no growth OR less then 1 cm of growth) from last scan.  So he now thinks I am doing "REMARKABLY WELL" on Arimedex and that we should soldier on with same routine. 

I will schedule another follow-up visit with Radiologist so I can see the latest scans myself, just cause, you know, I like to do to do that... 
And I remain, um, shall we say, less then fully re-assured by the latest in this good news/bad news/good news roller-coaster ride than I might have been even 6 months ago.  Don't get me wrong, I'll take the good news!  I just try to keep the whole big picture in mind.  I get another scan in 3 months.  So I guess we can say, Hooray for now!

Worse thing that happened today is I gave in to a Frito craving and now I feel a little yucky.   Going to nap.  Love to all y'all. 
NEW NEWS:
DATELINE JAN 30, 2012
My next Celilo infusion date is TOMORROW, JAN 31st-- which by some freak of calendar is four weeks from my last appointment, JAN 6th.  Go figure.
Re-reading the above myself I see I did NOT address what I think of as my biggest lesson/accomplishment from my tangle/tango with the medical establishment earlier this month.  Then I realized I had already written about it here on this blog, but it bears repeating, because the opportunity for the lesson itself keeps repeating, and because it is so damn true-- and because I continue to get better at it with practice!  Here it is:

I am getting better at respectfully standing my ground and asking for what I want from my medical team without working myself into a snit because they do not remember or already know what I know about my body, my situation,  and my preferences.  I am able to be a more competent member of my own team-- to be more responsible about how I participate and less panic-y and judgmental about how others participate.
I cannot emphasize how much easier this makes my life.  I have to hold my tongue and curb my impatience and refrain from judgement-- probably good practice for me anyway (If you think I can't hear you laughing out there, you are wrong!) -- but the rewards are so great and so immediate, that I think I am really starting to learn something here.  When I can engage in this way it causes less suffering all around-- to the clueless receptionist, the harried tech, the nurse who has been praying to Jesus all morning in anticipation of the hell of getting a needle in my arm-- and-- oh, yeah--  TO ME!

So.   Here's hoping the force of mindfulness is with me tomorrow.   Any stray kind thoughts sent to bolster this intention are appreciated.